Skip to main content

Waiting

We meet with the oncologist tomorrow (June 30) at 11am. I've never experienced a period of waiting like this. We wait to find out about college or grad school admissions, for pregnancy results, for holidays and vacations, for news on grant proposals and journal manuscripts, for spring to arrive, for planes to depart. Christians wait during Advent and Lent. 

This waiting feels fundamentally different. We will find out if I get to take the easier road (targeted therapy) or the harder road (chemo). Until tomorrow, everything is in limbo. We don't know if we'll be able to take the trips we had planned in July. I haven't started revising my syllabus for the fall because I don't know if I'll be able to teach in person or have to switch to an online course. I don't know if we'll be able to celebrate my 50th birthday in July the way we had planned. I plowed through feedback on chapters for the book I'm co-editing because I don't know what kind of side effects I may have to deal with in the coming weeks and months. It's been difficult not to be able to plan anything. Tomorrow at least we will know what the treatment will entail. We will have a plan, and that will help ease some of the uncertainty.

Comments

  1. Lots of prayers and a book recommendation -

    https://www.amazon.com/Comfortable-Uncertainty-Cultivating-Fearlessness-Compassion/dp/1590300785

    ReplyDelete
  2. Wishing you certainty, and endurance for all the uncertainty

    ReplyDelete
  3. Hoping for the very best news. Trying to keep things lighter, the crew arrived yesterday to spruce up your landscape. They are doing a good job, although I'm sure they wondering who the old bat is who is watching them like a hawk. Can't wait for you to come home. xoxo

    ReplyDelete
    Replies
    1. Aww, thank you. I'm glad the yard is looking good.

      Delete

Post a Comment

Popular posts from this blog

Tipping point

Dr. El Khouray came in yesterday and determined that I'd reaching a tipping point, meaning the worst is behind me and I've continued to show improvement. This was really, really good news to hear. Proning continues to be very effective, so I've spent a couple hours each morning and afternoon on my stomach, in addition to sleeping on my stomach at night. In the afternoon I invariably fall asleep since there is nothing to do other than listen to an audio book! I'm able to move about the room more; yesterday I did something like 4 little loops with an occupational therapist.  Yesterday I was down to about 11-13 L oxygen/minute. The case manager told me that to go home I need to be at 6 L or less. Today I'm at 6 L and holding steady with my oxygen saturation rate. I haven't talked with a doctor yet today, but I think this means that Monday is still a realistic release date. Until today I had thought that Monday would be out of reach; I didn't want to set myself ...

Back in the hospital

Until about 1pm I had been doing pretty well. I even spent part of the morning off of oxygen during a student's comps exam on Zoom. Then out of nowhere I felt really short of breath; even on 6L (maximum) oxygen my saturation dipped into the 50s at one point. Leland had the brilliant idea of putting both cannulas (oxygen tubes) in my nose--one from the oxygen concentrator (6L) and one from the portable oxygen tank (5L). That helped stabilize my oxygen level until the ambulance came.  So I'm back in the ICU on high-flow oxygen. :( The doctors are investigating various possibilities, including pneumonia, some other kind of infection, side effects of Tagrisso (my cancer medication), or ??? I'm back on heparin (blood thinner), antibiotics, and steroids. My oxygen and heart rate are slowly starting to improve.  Just this morning I had called the Mt. Nittany physicians group to see if I could make an appointment with any of the 3 pulmonologists in their practice. No openings until...

transatlantic flight

The last time I took a transatlantic flight, I barely survived. I had to be carted off the plane by EMS personnel because I was too short of breath to walk even a few steps. Tomorrow I'm flying to England. Needless to say, I'm hoping this flight is uneventful. I'm relieved that my friend and colleague Carol is flying with me (we are presenting at the British Educational Research Association conference in Manchester). I wouldn't have felt comfortable making the trip by myself. I will bring a heavy backup battery for my portable oxygen concentrator because airlines stipulate that you need enough battery power to last 1.5 times the flight duration. I'm not looking forward to having to wear the concentrator tube plus my glasses and a mask (too much COVID still going around) for the 7- to 8-hour flight -- lots of tubes, bands, and apparatuses on my ears, nose, and face. I am grateful that my blood thinners are working and that my lungs have improved enough that I can o...