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Heading in the right direction

The signs keep looking up, albeit very slowly. Last night while I was sleeping they were able to reduce my oxygen flow to 60% (down from 90-100%). The doctor switched up the steroid treatment a bit, which he thinks helped. Today I'm still on somewhat a reduced oxygen flow and have also graduated to a lower-flow oxygen tube. It is much more comfortable, less noisy, and allows me to breath in and out through my nose (instead of in through nose, out through mouth). I've been spending more time in bed in the prone (stomach-down) position because this really helps my oxygen levels recover and is a proven COVID therapy. I am still on blood thinners, but at this point they are primarily treating me for COVID (with an underlying cancer diagnosis). Moving from bed to chair still takes a lot of exertion, but it's getting a little bit better, i.e., my oxygen doesn't drop quite as low.

I had a fabulous nurse today (Julie) was who very attentive and encouraging. She also told me that I'm the best patient ever, so obviously she's my favorite thus far. Yesterday, by contrast, I waited 50 minutes for a nurse to come help me get out of bed in the morning. I even used my cell phone twice to call the ICU! The nurse managers were not pleased to hear this. Overall, the doctors and nurses have been great. Alex, a night nurse, is originally from Russia (I was warned by a nurse not to ask about his politics/opinion about Putin). Darrell was a COVID travel nurse in several states before settling here. It took 6 days, but I finally made a Penn State connection: the nurse manager studied at PSU for 3 years and her step-daughter is starting on the soccer team this fall. 

Yesterday's highlight was a visit from Leland and Lily--the first time I'd seen Lily since I was admitted to the hospital last Thursday night. Their visit helped lift my spirits. Lily came equipped with Sushi Go; we played 3 rounds but they didn't even let me win. We caught up on some episodes of Only Murders in the Building and Leland handed off a trove of trashy magazines from Anna. Thankfully, I'm getting caught up on Ben Affleck and JLo, although I'm now worried that Prince Harry is living a lie! 

My doctoral advisee, Alexis, came to visit for a while today and brought me a decaf Frappuccino, a luxury I don't usually allow myself (the hospital seems to be making all kinds of exceptions of about extra visitors, outside food and drinks, etc.). Alix planned to come later in the afternoon. I was resting in my bed, opened my eyes, checked my phone, and saw a message saying she was in the room but didn't want to wake me. I texted back that I had been resting not sleeping and to come on in. Then I turned my head and was shocked to see her sitting right there! I had indeed fallen asleep. Alix was my hair stylist today: she washed my hair with dry shampoo/mousse that the nurse provided. I feel like a new person. 

Clean hair!

I still don't know when I'll be released. Monday is the best-case scenario, but I'm trying not to get my hopes up. I still have a long way to go before I can wean off the oxygen. 


Comments

  1. Thanks for the update - glad to hear that things are on the upswing!

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  2. Glad to read this news! Yay for family, friends, favorite nurses and definitely yay for things looking up…

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  3. Awww!!! I love seeing you and Alix together! Glad you got good time with friends and family and are, you know, breathing better. Hang in there! 💜melis

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  4. I’m so glad you’re feeling a little better and have so much support. -Betsy

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  5. Hey Esther I’m glad that I know that I can start a second career as a head massager lol. It was great to see you and yes you were totally snoozing when I came in. I just did some work and waited for you to wake up.

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  6. Very important question: Do you have deodorant??

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    Replies
    1. I do, but truth be told, I haven't needed it since I get no physical activity. My visitors may beg to differ...

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  7. YAYYYY for
    Improvements
    Community
    Clean hair!
    Sushi Go!!
    Only Murders in the Building

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  8. This is excellent news!!! Our God is able. You are looking beautiful 😍 By the time I get to you I expect you to be cutting my food and brushing my hair 😁😁 seriously are they allowing outside food?

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    1. Haha. The rules seem a bit mushy. They let Alexis bring me a Starbucks. They monitor food more closely (e.g., I was denied a cookie for lunch b/c it put me over the sodium limit!).

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    2. Alisa too funny 😂 love ya! More progress coming today!!

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  9. This posting was a joy to read. Small everyday improvements are good. Don't worry about your returning home, it will happen. For now your body needs the medical attention. So great to see that your friends are coming to spend some time with you. Trashy mags! LOL That's one way to get distracted. Thanks for sharing.

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    1. It is really, really hard not to focus on how long it will be before I can go home. On the plane last week I couldn't walk a few steps without losing my breath...and I'm still in the same situation, although I know other indicators have improved. :(

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  10. So glad to hear you are moving in a positive direction. It is nice to chat with the nurses and here about them and realize it is a small world we live in because there is usually some kind of connection. Dani and I have made so many friends who continue to support and follow her journey. I am so grateful they have let me stay with Dani in the hospital to help her when she needs to get out of bed so she doesn't have to wait. I continue to keep you in my prayers and thoughts. Sending lots of hugs from State College.

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    1. Thanks, Carol. I've been thinking of you all a lot during this experience. Nurses are amazing. I can't imagine how comforting that is for Dani to have you there. Is she still hospitalized?

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  11. Thank you for the updates…been thinking of you! I can’t believe it took 6 days to find a PSU connection…you aren’t even that far away! I’m so glad Lily got to visit and that you still have your sense of humor…hope Prince Harry is ok! Keeping working hard to get better…sending lots of love and healing thoughts! 💗

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    1. I know, 6 days for a PSU connection in the DC area is kind of ridiculous. I do worry about the royals and the celebrities who did NOT wear it better. Thanks for your encouragement.

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  12. So happy to hear about positive progress. Go Esther! Glad Lily and Leland and friends are visiting. You look fabulous💃🏻💃🏻💃🏻

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  13. So very glad that things are moving in the right direction! Trashy mags and tv mysteries sound like just the right level of brain work at this point. I've been grateful that you blog updates, you're on my mind a lot. We continue to pray for the three of you.

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  14. Right!! Just when you think YOU’VE got problems, along comes Prince Harry!!! Hang in there Esther! We’re all thinking about you!!

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    1. I know right? In all seriousness, though, I'm in the Harry & Meghan camp--good for them for getting out of England and salvaging her mental health from nasty racist media and royals.

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  15. Your amazing ! You are healing so well ! Sending love and healing !

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  16. Glad to hear you are on the mend! -Heather TZ

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