Skip to main content

Holding steady

We traveled to Pittsburgh yesterday for my 3-month appointment. I had the CT scan done last week, and since my pulmonologist in State College ordered it, I could read the report online later that same day. So I knew ahead of time that the scan showed no change: the cancer isn't spreading, but it's not disappearing, either. Dr. Villaruz, my oncologist at UPMC, confirmed this and said that it's great news, that I look great, etc. 

Having no background in oncology, the radiologist who wrote the CT scan report noted "extensive emphysema." Dr. Villaruz explained that there are features of my lungs that often accompany emphysema, such as enlarged airways and pockets of air, and that there is also extensive scarring (fibrosis). This is why I still need to use oxygen while exercising. The scarring could be due to the cancer itself, the effects of a reaction to Tagrisso, the pneumonitis (inflammation) I had last summer, or ??? The only way to determine the cause is to do a bronchoscopy (lung biopsy). If I want this procedure, I need to ask my pulmonologist. Dr. Villaruz couldn't say -- and I don't think anyone can -- whether the scarring will improve over time or whether I've hit a plateau. Not knowing is hard. When I had the pulmonary emboli last summer and fall, I thought I would be off of oxygen once they resolved. Little did I know... I will ask my pulmonologist what he thinks about a bronchoscopy. It's an uncomplicated outpatient procedure (I've already had 3, I think), so I don't see a downside other than the (unknown) expense.

Coincidentally, my friend in State College who also has lung cancer and has the same primary care physician and oncologist had an appointment right after mine. We just missed seeing each other. 

The resident (?) assisting Dr. Villaruz was named Enrique. I asked what the university initials (UFPE) on his lab jacket stood for. Turns out he's from Brazil, so I mentioned that my colleague is currently in Brazil giving talks on her book about the Landless Workers' Movement. When we learned that he's from Recife, I told him that I teach a graduate class on Paulo Freire, who was from Recife and later did adult literacy work there. When he came back in the room, he informed us that he attends the same university where Freire taught law!

On our way back home, we stopped at our friend David's house for a lovely lunch. We'll return for another appointment in 3 months. The drive home was uneventful, unless you count seeing a Lily truck--our first such encounter.




Comments

  1. Yay for the Lily sighting! Always a good sign to see truck with daughter’s name 🙏🏽🙏🏽 I’ll be praying for the biopsy decision, to do or not to do. Thanks for sharing dear. You are holding strong and I’m praying it will disappear very soon, big hugs love ya 💕

    ReplyDelete
    Replies
    1. Thank you, Alisa! I'll let you know if I ever see an Alisa truck.

      Delete
  2. Glad to hear that things are holding steady! Sending you good wishes (and happy to get veggies anytime!) -M&M

    ReplyDelete
    Replies
    1. Thank you, Moriah! We appreciate your getting veggies for us on Tuesday.

      Delete
    2. Thanks for the update, Esther--I'm counting the holding steady as being in the "no news is good news" category! And yes, also counting the "Lily" truck sighting as making your trip home eventful!! :) Cheers to both!

      Delete

Post a Comment

Popular posts from this blog

regular update

I had my regular oncology appointment in Pittsburgh yesterday. Dr. Villaruz said the scans look good and everything is stable. Although I don’t have much scanxiety nowadays, it’s always a relief to get good news. Just to be sure that my understanding was correct, I asked her why I’m not a candidate for surgery. It’s because of the cancer’s growth pattern. The one nodule that’s visible on the CT scan could just be scarring; she’s not sure if it’s a tumor. When I was diagnosed, I was told the lung cancer was “lepidic.” This means that the tumor cells were growing along the lining of the alveolar structures (air sacs).* That’s why my lungs looked like they were draped in cobwebs. You can’t do surgery in enough places to get all of it. Thankfully, Tagrisso swept out those cobwebs – and continues to do so. We go back in December for a regular appointment. *Lepidic spread tends to be slow-growing, with minimal invasion of nearby tissues, less chance of metastasis, and overall better progno...

38.6 months

September 18 marked 38.6 months (3 years, 2 months, 18 days) since I first started taking Tagrisso. Why is 38.6 months significant? Because it is the median overall survival in the FLAURA study, a landmark study (2014-16) comparing Tagrisso and older targeted therapies among patients with advanced non-small cell lung cancer, EGFR mutation, and no prior treatment. 279 patients received Tagrisso and 277 people received an older drug (in addition, all patients received at least one dose of a trial drug). Nearly 58% of patients had died when data collection stopped. However, patients in the Tagrisso group lived nearly 7 months longer (median) than the control group. When Leland and I initially read that number – 38.6 months – in the Tagrisso promotional materials, we were stunned. This was supposed to be good news? The median age in the FLAURA study was 64 and at the time (August 2022), I had just turned 50. But still, it was a sobering statistic. For the longest time, I didn't feel ...

A failure of institutional care

I just hit "send" on this letter to my dean and associate dean. Mic drop. I've never sent such a scathing letter, but it's definitely called for in this situation. I'm not expecting anything other than a "Oh, that wasn't how we intended to make you feel; our hands were tied" email. Dear Dean Lawless and Associate Dean Lloyd, When I wrote to Professor Land [my department head] to see if I could get a course release this fall due to having lung cancer plus complications from pulmonary embolism and COVID, I had no idea what I was in for. When faculty friends in other colleges have had health crises (ones that don’t warrant a full-semester medical leave), their department head or dean has simply said, “Don’t worry about teaching this semester. We’ll figure it out.” I figured the same would happen in my case. To be blunt, the way that my case was handled was a colossal failure of leadership. As my husband and I have shared my story with colleagues at PSU ...