Skip to main content

No news is good news

It’s been a while since I’ve posted an update, mostly because I’ve been too busy to write. During the spring semester I was supposed to continue using my intermittent FMLA hours to work less than full-time, but I had too many commitments that couldn’t be postponed or reduced (I’m working on 3 grant-funded projects, co-editing a book, writing an article with my graduate assistant, etc.). From mid-March until last week, I read 800+ pages for doctoral student defenses (1 qualifying exam, 2 comprehensive exams, and 3 dissertations – including one of my advisees, who successfully defended). So obviously, I am back to working full throttle!

I’ve continued to bike indoors (45 minutes, 4-5 days a week). Every time I think it’s nice enough to try biking outside with my portable, the weather doesn’t cooperate. So, for now I’m getting to watch a lot of movies while biking – mostly artsy/depressing/foreign films and documentaries that don’t interest Leland.* I have a reputation for choosing these types of movies to watch as a couple or family. We only get a few minutes in before everyone else loses interest and then for months I endure merciless mocking for my bad movie choice. (The latest such incident was “Minuscule: Valley of the Lost Ants,” a wordless animated movie.)

A big “first” is that I have taken up strength training 2-3 days/week. I haven’t entered a gym since 1995 or ‘96, when I was living in Chicago and couldn’t run due to chronic shin splints. Over the past year, I’ve been reading a lot about how menopausal women benefit from heavy lifting. Berta at Kinetic Fitness (a small gym that she owns with her business partner, a colon cancer survivor) is fantastic. I’m able to use my portable, either putting it on the floor or wearing it as a backpack. I started at zero and am slowly building up strength. I’m now back to my pre-hospitalization level of doing 3 sets of 10 squats with a 20K kettle bell—and hoping to move beyond that. Once I get the hang of things, Berta will set me up with workouts that I can do independently at the gym and then we’ll do a periodic one-on-one session for a new set of workouts, etc. My exercise options are very limited because I have to use the portable, and I’m still depressed that I can’t run and will probably never be able to run again, but I am trying to work with the options I do have: biking and strength training.

Another first was Leland’s and my trip to Puerto Morelos (near Cancún) for our 20th anniversary on May 3. This was our first international flight since the horrific flight back from Germany. I’m not comfortable yet being too far away from a hospital, so we chose to go somewhere that wasn’t too far off the grid. Everything went smoothly – it’s a direct 4–5-hour flight from Philadelphia. We just chilled at the resort, walked into town a couple times, and made the most of the swim-up bar, where I discovered a new favorite drink: tamarindo mojito. As I said in my Facebook post on our anniversary, I was brought up believing that gambling is wrong, but I won the lottery when I married Leland. It’s wonderful to spend 20 years with someone who “gets you”: One of our favorite movie quotes is from The Good Girl (2002), in which Justine (Jennifer Aniston) says, “After spending their whole lives never getting got, with one look they get each other completely.”


We made it into the resort newsletter!


Hence the "no swimming" signs...


This guy and his paramour were wandering around the pool area in search of snacks.


Upon our return, our friends surprised us with a cake for our anniversary!

Mother’s Day had special significance this year, not only because I want to be able to celebrate many more Mother’s Days with Lily and Leland, but also because May 14 was exactly 11 months since my diagnosis. Lily and Leland made it a special day, with body care products from Thistle Farms (a social enterprise that my friend Helena introduced me to) and jewelry that Lily made with sea glass we’ve found in our travels. We had brunch at Barrel 21 and then hiked around Colyer Lake, our first family hike since my hospitalizations.


fringed polygala (gaywings)



We came across this little guy. I hope s/he makes it to adulthood. 

sea glass earrings and necklace made by Lily

In short, I’m back to living a relatively normal life, other than my exercise limitations. We go to Pittsburgh again next week for a follow-up appointment, so I will post again soon.

*list of movies I’ve watched while biking:

  • Against the Ice (based on an incredible, true story about a Danish expedition to prove that Greenland was one land mass, thus preventing the US from claiming part of it)
  • Descendant (documentary about the Clotilda, the last known slave ship in the US, and the formerly enslaved people's descendants in Africatown)
  • Fire of Love (documentary; unbelievable photos and video of volcanoes; I'm definitely not going to become a volcanologist anytime soon)
  • The Giant (Basque film based on true story)
  • Lovers Rock (meh. 68 minutes of watching people dance. Small Axe film #1, Mangrove, was far better)
  • Lunana: A Yak in the Classroom (Oscar-nominated film from Tibet; light and heartwarming)
  • Man on Wire (French documentary about man who walked between the Twin Towers on a high wire; confirms why I will never try high wire)
  • Nobody Knows I’m Here (Chilean film; OK but wouldn't watch again)
  • Pinocchio (I appreciated Del Toro's anti-fascist message) 
  • Respect (fantastic music, Jennifer Hudson is amazing)
  • Sir (Indian film; it had its moments, but overall too predictable & cliché)
  • Tell Me Who I Am (documentary about twin brothers, one of whom had amnesia; incredibly unsettling and disturbing, but also very moving; raises profound ethical questions)
  • Time (documentary about a woman's fight to free her incarcerated husband and keep their family together; moves pretty slow, but a sobering/inspiring story)

Comments

  1. Happy belated anniversary!!💕

    ReplyDelete
  2. Congrats on everything!

    ReplyDelete
    Replies
    1. Sorry, Lester the Cat stepped on the RETURN key before I was ready to post: Congrats on all these happy events/thresholds! --Matt Mc.

      Delete
    2. Haha. I think I've told you before that Leland's brother's name is Lester. :)

      Delete
  3. Esther says that Lily and I mercilessly mock her for months after she treis to get us to watch a movie that is overwhelmingly depressing. I would say that it a more accurate depiction would be that we might occasionally suggest, as we are starting to watch a new comedy or action movie, that maybe we could find a slow, depressing movie to watch instead.

    ReplyDelete
  4. Dear Esther---Praising God for all the progress and new milestones!! And CONGRATULATIONS on your 20th Anniversary!! Loved reading this post....especially your quote about how you won the lottery with Leland. :)

    ReplyDelete
    Replies
    1. Thank you, Irene! I always remember your marriage year because it was right after we moved to State College in 2005. :)

      Delete
    2. Wow amazing update, Happy, happy 20th, That absolutely does not seem possible! Thanks for sharing this and the movie list. The only one I’ve seen is Pinocchio, which didn’t turn out to interest a 5 year old :D Henson

      Delete
    3. Thank you, Henson! Yeah, I think Pinocchio was more for adults. :)

      Delete
  5. Congratulations on your anniversary and thank you for sharing 'life'!
    I am currently in Sardinia speaking at a conference about the Islands of the Sea (Islas del Mar) of Europe.

    ReplyDelete

Post a Comment

Popular posts from this blog

Healthcare costs and insurance woes and victories

Those of you who have read this blog from the beginning may recall my posts about how inexpensive healthcare is in Germany compared to the US. I now have additional proof. I've been receiving "explanation of benefits" statements from Aetna detailing the cost of my hospital stays and other healthcare services since the end of July. Close your eyes and guess how much these amount to. Higher. No, higher. Still higher. Well over $200,000. Of that, I have paid maybe $100 plus some $20-30 co-pays for doctor's visits. Add to that my cancer and blood thinner medications, which would cost about $16,000 per month without insurance. I have no idea what people in my situation do if they are uninsured or under-insured. My recent interaction with one of my German doctors illustrates another stark difference. Before leaving Germany, I had asked my doctor what to do if I received bills from the LungenClinic after we had moved and closed our Deutsche Bank account (all bills in Germany...

Indolent nodules

We met with my oncologist (Dr. Villaruz) and radiation oncologist (Dr. McCall) at UPMC in Pittsburgh yesterday en route from visiting family in Grand Rapids, MI. The main nodule we were watching grew by another millimeter or so. Dr. Villaruz described it as “indolent.” I asked what that meant and as she started to say “growing very slowly,” I recognized the word and blurted out “lazy!” I remarked I’d never heard indolent used in a medical context, and Dr. Villaruz said she’d never heard of it outside of medicine. So we both learned something. She and Dr. McCall said that there is no urgency, but that within the next 9-12 months, they would want to radiate the more clearly defined nodule and another one close to it. A third one looks like “ground glass,” a term for something that is hazy and not quite solid, but you can’t radiate something that is ill-defined and can’t be clearly imaged. It will be much easier to do radiation in the summer than during a busy semester or the winter b...

Four years

Sunday, June 14 marked 4 years since I was diagnosed with lung cancer while living in Hamburg. Those of you who have followed my journey from the start know that my family and I went to hell and back several times during those first six months. Here I am before, during, and after. The photo below was the last taken before my life unraveled. I went on a photography outing with the American Women's Club of Hamburg. When my doctor said my x-ray showed "infiltration" and I should get a CT scan, I put it off for a day so I wouldn't miss this event. That's how unconcerned I was. The possibility of cancer never crossed my mind, despite my severe shortness of breath. This was my hospital room at the LungenClinic, where I learned my shocking diagnosis. I was sitting at the little table with the doctors and Leland was on Zoom. Leland had to travel to the hospital by train (an hour-plus trip) before we could process the news together, shellshocked. This photo shows me in the...