Skip to main content

Oxygen and general update

Just before the Christmas break, I convinced two friends to accompany me to Pittsburgh. My second altitude simulation test provided an excuse to explore the city after a stressful semester. I scheduled the test to see if I still need oxygen while flying. The test takes only 20 minutes. This time I did not need any supplemental oxygen! Last year I crossed the 88% oxygen saturation threshold within about 4 minutes. This year I was at 88% only briefly; whenever I saw the number drop below 90, I took a few deep breaths and watched it go back up. The respiratory therapist said I was right on the cusp of needing oxygen and that my doctor should decide. My pulmonologist was out of the office, so I took the portable with me on our trip to Minneapolis and monitored my sats. I did end up using it part-way into the flights because my levels were hovering in the mid-80s. 

Back to Pittsburgh: we had a fabulous lunch at Bao Buns (the pork soup dumplings were phenomenal) and followed my friend Nicole's recommendation to check out the Lawrenceville neighborhood, including a French bakery. I exercised great restraint by eating only one half of a chocolate almond croissant and saving the rest for Leland and Lily. We browsed in a bead shop where we heard someone mention Penn State. Of course, this woman and her entire family are alumni or current students. 



I do still need oxygen to exercise. I had hoped that my recent pulmonary function test results would mean that I could skip the extra O2, but within a few minutes of getting on my bike, my oxygen dropped to the mid-80s. So I am still using my portable to bike and lift. Speaking of which, here is my progress in the past 6 months: 



My ponytail is much thinner than it used to be. My hair did stop falling out about 1.5 weeks after going back on Lovenox. 

In other news, I tested positive for COVID this morning. 😭 I managed to escape it for the past 1.5 years. Thankfully my symptoms are mild. I will start the Paxlovid treatment tomorrow morning. I hope I'm not one of the unlucky few to get rebound COVID. 



Comments

  1. It is such a celebration and testament to see these improvements! And seeing that muscle, you're amazing. I'm sorry about COVID - hopefully the Paxlovid will make all the difference.

    ReplyDelete
  2. Wow Esther this is great to hear and you look amazing. Hope I can see you soon! Henson

    ReplyDelete
  3. I took Paxlovid and had the rebound. Not ideal but still a worthwhile trade in return for lower chance of hospitalization or long COVID. Another friend suggested Big Red chewing gum to combat the aftertaste one may get with Paxlovid, but I did not learn that trick in time.

    ReplyDelete
    Replies
    1. Just took my first dose. No aftertaste. Phew! A friend of mine also got rebound COVID from Paxlovid.

      Delete
  4. Wow! Look how far and how much you have accomplished. Very inspiring to all !

    ReplyDelete
  5. Hey friend, on a fun note first! Food looks yummy. I want some. Reminds me of one of our Sticky Rice runs. ❤️ You are more disciplined than I am with that almond croissant 🥐 Also how can I get those muscles? Incredible. You’ll have to give me your routine 🙏🏽 Now I’m sooo sad about the Covid. 😢😢😭 I know you have had too many runs with it & not at all welcome 👎🏽👎🏽. I pray you feel well fast & Paxlovid works for you 🙏🏽 Also pray Leland & Lily are spared. Big hugs

    ReplyDelete
    Replies
    1. Yes, yummy sticky rice! We've now eaten at 3 Nepali restaurants (Albany, Burlington, and Harrisburg) - all were great. My strength training routine is 1 hr. x 3 days/week at the gym, focusing on heavier weights x lower reps, mixed in with other exercises focusing on core, functional movement, general strength. The trainer or gym owner walk me through a new set of 3 workouts (created for gym members who don't do classes) every month. I do each 4 times and then get a new set of workouts.

      Delete
  6. Picture worth a thousand words. Sorry, I mean the dim sum of course! Let's go back there when you are next in town.

    ReplyDelete
    Replies
    1. Yes! It was amazing. That was my second time eating soup dumplings, the first being in London's Chinatown.

      Delete

Post a Comment

Popular posts from this blog

Healthcare costs and insurance woes and victories

Those of you who have read this blog from the beginning may recall my posts about how inexpensive healthcare is in Germany compared to the US. I now have additional proof. I've been receiving "explanation of benefits" statements from Aetna detailing the cost of my hospital stays and other healthcare services since the end of July. Close your eyes and guess how much these amount to. Higher. No, higher. Still higher. Well over $200,000. Of that, I have paid maybe $100 plus some $20-30 co-pays for doctor's visits. Add to that my cancer and blood thinner medications, which would cost about $16,000 per month without insurance. I have no idea what people in my situation do if they are uninsured or under-insured. My recent interaction with one of my German doctors illustrates another stark difference. Before leaving Germany, I had asked my doctor what to do if I received bills from the LungenClinic after we had moved and closed our Deutsche Bank account (all bills in Germany...

A failure of institutional care

I just hit "send" on this letter to my dean and associate dean. Mic drop. I've never sent such a scathing letter, but it's definitely called for in this situation. I'm not expecting anything other than a "Oh, that wasn't how we intended to make you feel; our hands were tied" email. Dear Dean Lawless and Associate Dean Lloyd, When I wrote to Professor Land [my department head] to see if I could get a course release this fall due to having lung cancer plus complications from pulmonary embolism and COVID, I had no idea what I was in for. When faculty friends in other colleges have had health crises (ones that don’t warrant a full-semester medical leave), their department head or dean has simply said, “Don’t worry about teaching this semester. We’ll figure it out.” I figured the same would happen in my case. To be blunt, the way that my case was handled was a colossal failure of leadership. As my husband and I have shared my story with colleagues at PSU ...

regular update

I had my regular oncology appointment in Pittsburgh yesterday. Dr. Villaruz said the scans look good and everything is stable. Although I don’t have much scanxiety nowadays, it’s always a relief to get good news. Just to be sure that my understanding was correct, I asked her why I’m not a candidate for surgery. It’s because of the cancer’s growth pattern. The one nodule that’s visible on the CT scan could just be scarring; she’s not sure if it’s a tumor. When I was diagnosed, I was told the lung cancer was “lepidic.” This means that the tumor cells were growing along the lining of the alveolar structures (air sacs).* That’s why my lungs looked like they were draped in cobwebs. You can’t do surgery in enough places to get all of it. Thankfully, Tagrisso swept out those cobwebs – and continues to do so. We go back in December for a regular appointment. *Lepidic spread tends to be slow-growing, with minimal invasion of nearby tissues, less chance of metastasis, and overall better progno...