Skip to main content

quarterly update--and winning a healthcare battle

I had my CT scan on Monday and oncology appointment yesterday. This time I scheduled the scan and appointment back-to-back so that I didn't have to resist temptation: reading the CT scan report before my appointment (see my previous post). Dr. Villaruz said my scan looks stable. The 8mm nodule is still there, but she thinks it might be scar tissue and isn't concerned about it. Although my lungs don't look "normal," the cloudy webbing that draped my lungs in 2022 is much less visible now. There is always some anxiety before these appointments, but they are getting easier for us as I have stabilized. Stable is good. 

In other news, Penn State employees don't know it, but we won a major behind-the-scenes healthcare battle this week. As a faculty senator, I'm serving on the Faculty Benefits Committee for the first time. (Faculty Benefits is a misnomer: we discuss benefits, including health insurance, for all PSU employees, not just faculty.) I have zero scholarly expertise in benefits, but I have way more personal experience with the healthcare and insurance systems than I ever wanted. 

HR has discussed with our committee (and the Healthcare Advisory Council) a proposed change to the 2025 Highmark insurance plan: requiring prior authorization (PA) for all outpatient advanced imaging (CT scans, MRIs, PET scans). This policy would apply even to people like me who get routine scans as part of our treatment plan. 

I consulted a professor with expertise in health insurance; he helped me strategize about how to approach this issue with HR. Another senator and I, along with a few others, fought hard against this proposed change. PA often leads to delayed or interrupted care, abandoned treatment, and adverse health outcomes. This recent New York Times op-ed describes some horrific cases. Then there is the added stress, anxiety, and lost productivity from dealing with bureaucratic hurdles in addition to the health problem itself. In many cases, PA also increases healthcare costs, in part because providers have to hire staff whose only job is to deal with PA. (See this American Medical Association physician survey.)

This was a hill I was ready to die on. Thankfully, it didn’t come to that! HR wrote this week to say that they will not require prior authorization for outpatient advanced imaging. This is a huge win for the physical and mental well-being of PSU faculty and staff.

***

The College of Education faculty senators jokingly refer to ourselves as the “centaurs” (senators - centaurs, get it?). On a whim, I entered the following prompt in ChatGPT: create an image of a centaur defeating an enemy that is labeled “prior authorization.” Apparently, the free ChatGPT version doesn't create images (lame!), so here is what I got. (I can't get the font size to look right - sorry).

“I can't directly create images, but I can certainly help you envision it! Imagine a powerful centaur, half-human and half-horse, wielding a sword or a spear, charging forward with determination. The centaur represents overcoming obstacles with strength and agility.

In the background, you see a formidable foe labeled 'Prior Authorization,' depicted perhaps as a monstrous creature or a daunting fortress. It symbolizes the bureaucratic hurdles and delays often encountered in healthcare, where prior authorization processes can be time-consuming and frustrating.

The centaur, with a determined expression, is depicted striking down or breaking through the barrier labeled 'Prior Authorization,' symbolizing the triumph over bureaucracy and the ability to navigate challenges to achieve success. The image conveys the idea of perseverance and determination in overcoming obstacles in the healthcare system.”

Spot on.

A friend/colleague with paid ChatGPT surprised me by producing the image:


 Despite several attempts, she could not get ChatGPT to understand what a centaur is.

Comments

  1. On the plus side, ChatGBT still doesn't understand what a centaur is. On the downside, judging by today's emergency Faculty Senate meeting with the Penn State president, she doesn't understand what a senator is. You win some and lose some.

    ReplyDelete
  2. Awesome graphic. Too funny! This is an exciting win. Congratulations 🎈 often the best advocates are those who have been on the receiving end of difficult situations and have passion regardless of ‘expertise.’ Good for you. Also God is with you in the Stable condition. It will be gone 🙏🏽 we keep praying

    ReplyDelete
  3. Glad you are stable, that’s good! Wish my dad had this note for his insurance, no PA for scans… especially for ER visits & since they end up doing a scan anyway?

    ReplyDelete
    Replies
    1. Thank you, Brenda! Our insurance doesn't require PA for CT scans/MRIs during ER visits - and they had not proposed changing that, thankfully.

      Delete
  4. Praising God with you for the stable condition, Esther! And congrats on the healthcare battle victory! Love the ChatGPT image, both verbal & visual...lol! :)

    ReplyDelete
  5. Rejoicing with you and PSU employees that PSU will not require prior authorization for outpatient advanced imaging.

    ReplyDelete

Post a Comment

Popular posts from this blog

Cancer- and Tagrisso-versaries

June 14 marked three years since my Stage IV lung cancer diagnosis and on June 30, I will complete three years on Tagrisso targeted therapy.  with my first Tagrisso pills (a sample from my oncologist), June 30, 2022 Every year as June approaches, I feel like I am reliving my own Stations of the Cross, recalling what happened each day as I walk toward the inevitable, gut-wrenching diagnosis: my GP telling me the x-ray showed “infiltration” and recommending a CT scan, getting the CT scan and the radiologist (and Leland) thinking I had TB, being sent to the LungenClinic, the doctor ruling out TB and telling me cancer was one of 3 possible explanations for my symptoms, but that it was "unlikely" because of my age, and so on. Not long ago, a Stage IV lung cancer diagnosis was a sure, quick death sentence. A researcher who wrote an article  commemorating the 20 th anniversary of the discovery the EGFR (epithelial growth factor receptor) mutation driving my cancer recalled that i...

regular update

I had my regular oncology appointment in Pittsburgh yesterday. Dr. Villaruz said the scans look good and everything is stable. Although I don’t have much scanxiety nowadays, it’s always a relief to get good news. Just to be sure that my understanding was correct, I asked her why I’m not a candidate for surgery. It’s because of the cancer’s growth pattern. The one nodule that’s visible on the CT scan could just be scarring; she’s not sure if it’s a tumor. When I was diagnosed, I was told the lung cancer was “lepidic.” This means that the tumor cells were growing along the lining of the alveolar structures (air sacs).* That’s why my lungs looked like they were draped in cobwebs. You can’t do surgery in enough places to get all of it. Thankfully, Tagrisso swept out those cobwebs – and continues to do so. We go back in December for a regular appointment. *Lepidic spread tends to be slow-growing, with minimal invasion of nearby tissues, less chance of metastasis, and overall better progno...

Who needs their knees, anyway?

I hadn’t written a blog post about my knee injury because I wasn’t sure whether it was related to cancer, but now I know how they are connected. The short version is that my knee swelled up so badly that I couldn’t walk on the night of May 6th/morning of May 7 th.  Because I am on blood thinners, the knee joint kept filling up with blood, a condition that I learned is called hemarthrosis. I’ve spent the past 4+ weeks meeting with a bazillion doctors (GP, orthopedic doctor, orthopedic oncologist, orthopedic surgeon, hematologist), going to the ER (twice), having my knee drained (3 times), and mostly lying on the sofa for 2 of those weeks, trying to get the swelling to come down. I still have a bit of swelling, but I’ve been able to walk 10-20+ minutes the past week without making it worse. I’m still wearing a compression sleeve, which is a step up from the brace and crutches I was using before. Now for the longer version. There was no particular event that caused the injury. The d...