Skip to main content

Going home

Tomorrow I will go home after 13 days and nights in the hospital, 10 of them in ICU. Leland is driving me back with supplemental oxygen (if needed) and there will be oxygen at home when we arrive. I've lost 10 lbs. and a lot of muscle. I get winded walking around the hospital room. But I am getting stronger and feeling better every day! Most of the day I haven't needed any oxygen.

The song that keeps coming to mind is Freedom. I can’t say I’ve ever been able to move my body like Jon Batiste and his entourage—and I probably never will, no matter how strong my lungs are—but the song captures how I feel on the inside.

I’ve also been reflecting on Christian Brady's writings on the Psalms and lament. They offer “a healthy model for our own journey through grief: cry to God, lament, confess our faith, call God to action, and praise God.” Excerpts from Psalm 86 resonated with me:

Hear me, LORD, and answer me,
for I am poor and needy.
Guard my life, for I am faithful to you;
save your servant who trusts in you.
You are my God; have mercy on me, Lord,
for I call to you all day long.
Bring joy to your servant, Lord,
for I put my trust in you.
You, Lord, are forgiving and good,
abounding in love to all who call to you.
Hear my prayer, LORD;
listen to my cry for mercy.
When I am in distress, I call to you,
because you answer me….
Teach me your way, LORD,
that I may rely on your faithfulness;
give me an undivided heart,
that I may fear your name.
I will praise you, Lord my God, with all my heart;
I will glorify your name forever.
For great is your love toward me;
you have delivered me from the depths,
from the realm of the dead….
Give me a sign of your goodness,
that my enemies may see it and be put to shame,
for you, LORD, have helped me and comforted me.

***
I can't really say that I have any enemies (or frenemies, for that matter), but I am tremendously grateful to my friends and family, as well as the doctors, nurses, and other healthcare professionals, for being signs of God's goodness during the lowest, scariest time in my life.

Comments

  1. Praising our good God with you, Esther!!! For healing you and bringing you thus far. Love those moves on the Freedom video. :)

    ReplyDelete
    Replies
    1. Thank you! Yeah, do not attempt those moves at home!

      Delete
  2. Rejoicing with you! ~ Kathleen and Rick

    ReplyDelete
  3. So glad you are well enough to go home, Esther! Here’s to your continued healing. Matt and I keep rooting for you.

    ReplyDelete
  4. Replies
    1. Indeed. Classic State College to run into you yesterday.

      Delete
  5. So glad to hear you are heading home soon! That is a great pace of recovery -- keep climbing those [metaphorical] mountains! M&M&S&A

    ReplyDelete
  6. It’s wonderful the three of you will together again under the same roof!! Please don’t overdo when you first get home—you’re going to be super tuckered. Godspeed! - Leah W.

    ReplyDelete
    Replies
    1. Went out for a first walk (with oxygen) today. VERY slow.

      Delete
  7. Safe journey & see you when you get home! Wooohooo! 🥳

    ReplyDelete
  8. Cannot imagine how good it will feel to be home.

    ReplyDelete
  9. So happy for you, sis!! And thanks for those inspiring psalm excerpts! (Andy)

    ReplyDelete
  10. Lovely post. So glad that you will be home soon. Enjoy the ride.🎉🎉🎉

    ReplyDelete
  11. Happy you get to go home. We know what that feeling is like. Enjoy the ride and take it all in

    ReplyDelete
  12. Esther, thank you for sharing your journey with us via this blog. I am so glad to hear you are home and being cared for. I have recently walked with one of my best friends through his cancer experience and have seen friends and family rally in miraculous ways. We want to be available to you and your family as well. You are loved! Welcome home! Terry & Kendra Yoder

    ReplyDelete

Post a Comment

Popular posts from this blog

Healthcare costs and insurance woes and victories

Those of you who have read this blog from the beginning may recall my posts about how inexpensive healthcare is in Germany compared to the US. I now have additional proof. I've been receiving "explanation of benefits" statements from Aetna detailing the cost of my hospital stays and other healthcare services since the end of July. Close your eyes and guess how much these amount to. Higher. No, higher. Still higher. Well over $200,000. Of that, I have paid maybe $100 plus some $20-30 co-pays for doctor's visits. Add to that my cancer and blood thinner medications, which would cost about $16,000 per month without insurance. I have no idea what people in my situation do if they are uninsured or under-insured. My recent interaction with one of my German doctors illustrates another stark difference. Before leaving Germany, I had asked my doctor what to do if I received bills from the LungenClinic after we had moved and closed our Deutsche Bank account (all bills in Germany...

A failure of institutional care

I just hit "send" on this letter to my dean and associate dean. Mic drop. I've never sent such a scathing letter, but it's definitely called for in this situation. I'm not expecting anything other than a "Oh, that wasn't how we intended to make you feel; our hands were tied" email. Dear Dean Lawless and Associate Dean Lloyd, When I wrote to Professor Land [my department head] to see if I could get a course release this fall due to having lung cancer plus complications from pulmonary embolism and COVID, I had no idea what I was in for. When faculty friends in other colleges have had health crises (ones that don’t warrant a full-semester medical leave), their department head or dean has simply said, “Don’t worry about teaching this semester. We’ll figure it out.” I figured the same would happen in my case. To be blunt, the way that my case was handled was a colossal failure of leadership. As my husband and I have shared my story with colleagues at PSU ...

regular update

I had my regular oncology appointment in Pittsburgh yesterday. Dr. Villaruz said the scans look good and everything is stable. Although I don’t have much scanxiety nowadays, it’s always a relief to get good news. Just to be sure that my understanding was correct, I asked her why I’m not a candidate for surgery. It’s because of the cancer’s growth pattern. The one nodule that’s visible on the CT scan could just be scarring; she’s not sure if it’s a tumor. When I was diagnosed, I was told the lung cancer was “lepidic.” This means that the tumor cells were growing along the lining of the alveolar structures (air sacs).* That’s why my lungs looked like they were draped in cobwebs. You can’t do surgery in enough places to get all of it. Thankfully, Tagrisso swept out those cobwebs – and continues to do so. We go back in December for a regular appointment. *Lepidic spread tends to be slow-growing, with minimal invasion of nearby tissues, less chance of metastasis, and overall better progno...